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Nic-y, keep in mind, the medical community/Drs are "practicing" ,not perfect.
We learned to take Drs words with a grain of salt, they can be the most pessimistic people in the world.
My fav line in a movie ever, is when Cher tells her (movie) son's Dr, "if I took your advice, id have dug my son's grave clear to China by now" or at least, words to that effect.
After 4 years of torture at the Newington Crippled Childrens Hosptial Newington, CT, Kevin & I decided to put the house up for sale (cheap ) sell our business, which despite us, was booming, and do exactly that, spend whatever time Heddy had left (Drs gave us no hope) tog as a loving family.
Make no mistake, the next 21 years were not peaches and cream, but there were enuf good days, great days in fact..for us never to look back.
Point is believe in miracles..believe in your inner warrior...savor everyday we are blessed to be given..
God love and bless the Nicodemus Family