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New stage of life.

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Lissajess
(@lissajess)
Posts: 110
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Topic starter
 

I haven't been here in a while. My stepfather passed away unexpectedly. He dealt with more than I ever dreamed. My mother was diagnosis with Alzheimer's three years ago. I thought she was in the early stages. It now appears that it is the middle stages. I no longer work. I am her full time caregiver. Sometimes she doesn't sleep for 30 to 48 hours. If you are so inclined remember both of us in prayer.


 
Posted : April 13, 2015 8:05 pm
absnj
(@absnj)
Posts: 476
Reputable Member
 

I am so sorry to hear about your situation. Being a caregiver is very difficult work, please find some support groups to get help for yourself. Prayers are on the way.


 
Posted : April 14, 2015 3:41 am
larzv
(@larzv)
Posts: 129
Estimable Member
 

My prayers are with you..i am going through similar and being an only child and needing to work i have found senior care agencies who offer help at reasonable prices..do some research in your area and hopefully the load can be lightened for you…hang in there. i wish you the best...


 
Posted : April 14, 2015 4:20 am
Rusty
(@rusty)
Posts: 3259
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I went through this with my mom with the help and assistance of my dear aunt, who now lives across the street from us. Auntie is starting to require help and assistance, herself - having just suffered a stroke a few weeks ago.

Events like this are certainly life/game changers. That you accept the responsibility for her well-being speaks volumes about you as a person.

Don't be afraid or ashamed to seek help when you need it. Relatives, friends and even church groups can be valuable in providing you with needed break times.

I'm not necessarily a religious person, but my morning exercise ritual is followed by meditation and requests from my creator for strength, wisdom and above all - patience.

You're in my thoughts.


 
Posted : April 14, 2015 5:22 am
stormyrider
(@stormyrider)
Posts: 1581
Noble Member
 

sounds tough
If you haven't looked into it yet, there is assistance out there under many circumstances. Seek out the help of a local expert / social worker, etc
Prayers and vibes sent


 
Posted : April 14, 2015 6:45 am
robslob
(@robslob)
Posts: 3256
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All my best to you Lisajess.


 
Posted : April 14, 2015 7:16 am
BrerRabbit
(@brerrabbit)
Posts: 5580
Illustrious Member
 

Hang in there Lisajess, can relate, as primary caregiver of a deeply autistic child. You are a heroine for being there like that for someone. I have no idea how you would handle it when someone does not sleep for two days straight and you have to protect them all the time. I don't know what is available where you are, but out here there is respite care you can sign up for at the Disability Office, to get some breaks.


 
Posted : April 14, 2015 11:45 am
Quinn
(@quinn)
Posts: 96
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positive vibes and prayers your way Cool


 
Posted : April 14, 2015 12:24 pm
piacere
(@piacere)
Posts: 974
Prominent Member
 

I haven't been here in a while. My stepfather passed away unexpectedly. He dealt with more than I ever dreamed. My mother was diagnosis with Alzheimer's three years ago. I thought she was in the early stages. It now appears that it is the middle stages. I no longer work. I am her full time caregiver. Sometimes she doesn't sleep for 30 to 48 hours. If you are so inclined remember both of us in prayer.

I've been praying for you all along...


 
Posted : April 15, 2015 5:32 am
Stephen
(@stephen)
Posts: 3875
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Sending sincere best wishes and upbeat healing thoughts your way, Lissajess


 
Posted : April 15, 2015 8:56 am
Charlesinator
(@charlesinator)
Posts: 405
Reputable Member
 

Lisa let's deal with your number one problem, your mom's sleeplessness. (I believe the term is sun downing.) Get your doctor to prescribe something immediately. Seroquel was a lifesaver for us. More important than Arricept and Namenda which do not restore cognitive ability merely maintain the current level for a short while and are expensive. Alzheimer's is a horrible disease in that it prevents the person from sleeping. The lack of sleep make the Alzheimer's worse. Both of you and you especially need rest. Get something to knock her out. Seroquel worked for us. You will be in my prayers.


 
Posted : April 15, 2015 9:38 am
Lissajess
(@lissajess)
Posts: 110
Estimable Member
Topic starter
 

Thank you all for the prayers, positive vibes, and kind words.

Charles I will be asking her doctor about Seroquel in the morning. Thank you for telling me about it. She is on Arricept and Namenda. Her part D insurance has let me know they will no longer pay for Namenda, starting next month. So I will be looking for new part D insurance.

Thank you all again.


 
Posted : April 15, 2015 6:16 pm
Lissajess
(@lissajess)
Posts: 110
Estimable Member
Topic starter
 

Piacere

I've been praying for you all along...

Somehow that doesn't surprise me. Keep up the good work in shelter from the storm.


 
Posted : April 15, 2015 6:23 pm
CanadianMule
(@canadianmule)
Posts: 1766
Noble Member
 

Prayers and thoughts are with you. Some great advice here and especially from Charles. Seroquel has many great uses and definitely calms people and allows relaxation.

Hopefully you have some support and help. Don't try to do it all yourself as your health is important to both of you.


 
Posted : April 15, 2015 8:09 pm
Charlesinator
(@charlesinator)
Posts: 405
Reputable Member
 

Lisa losing Namenda as part of the equation may not be bad. Namenda is used in conjunction with Arricept to counter Arricept's side effects such as stomach troubles I believe. Maybe your mom won't experience any side effects and if she does the insurance should pick it back up on Dr.'s orders. Also like others have suggested there are resources out there. We were able to use a faith based day care which was very reasonably priced. Please PM me if you want I'll share anything I learned during our caring for my mom. And again you will be in my prayers.


 
Posted : April 16, 2015 6:24 am
piacere
(@piacere)
Posts: 974
Prominent Member
 

Piacere

I've been praying for you all along...

Somehow that doesn't surprise me. Keep up the good work in shelter from the storm.

you came into the shelter thread a while back and so I put you on my prayer list.

I pray for you every day.

some good advice from some good people here. Hang tough.


 
Posted : April 16, 2015 7:54 am
leftyblues
(@leftyblues)
Posts: 24
Eminent Member
 

prayers and healing vibes coming your way


 
Posted : April 16, 2015 8:46 am
Lissajess
(@lissajess)
Posts: 110
Estimable Member
Topic starter
 

Lisa let's deal with your number one problem, your mom's sleeplessness. (I believe the term is sun downing.) Get your doctor to prescribe something immediately. Seroquel was a lifesaver for us. More important than Arricept and Namenda which do not restore cognitive ability merely maintain the current level for a short while and are expensive. Alzheimer's is a horrible disease in that it prevents the person from sleeping. The lack of sleep make the Alzheimer's worse. Both of you and you especially need rest. Get something to knock her out. Seroquel worked for us. You will be in my prayers.

Thank you for your advice. Soon after this I finally got her doctor to agree to seroquel at night, a small dosage. Two weeks ago she had a panic attack in the doctors office. He put on a small dose in the morning and doubled her night time dosage. She is eating better, and we both get some sleep.

Thank you again.........all of you.


 
Posted : April 7, 2016 8:01 pm
Billyrock
(@billyrock)
Posts: 6
Active Member
 

May God bless you and help you both through this difficult time. Other current threads tempt me to respond to reveal what i know but your thread inspires me to be better, to pray and be humble. Thank you.


 
Posted : April 7, 2016 8:10 pm
BillyBlastoff
(@billyblastoff)
Posts: 2450
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{{{{{{{{{{{Peace}}}}}}}}}}}


 
Posted : April 7, 2016 9:25 pm
dadof2
(@dadof2)
Posts: 838
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prayers directed your way-wishing only good for you and your family.


 
Posted : April 8, 2016 2:40 am
TheBabe714
(@thebabe714)
Posts: 222
Estimable Member
 

prayers and peace to you and your family, praying for the rest you and your Mom
need that will bring each of you peace and comfort.


 
Posted : April 8, 2016 5:59 am
heineken515
(@heineken515)
Posts: 2010
Noble Member
 

Lissajess, positive thoughts, prayers and strength to you and yours.


 
Posted : April 8, 2016 8:02 am
BadLittleDoggie2
(@badlittledoggie2)
Posts: 50
Trusted Member
 

Continued prayers to you - my sister is the prime caretaker for our Dad who has among other things an aggressive form of cancer - I know it may be difficult, but try to get some time for just yourself - even if is only a half hour out of the house - glad you both are now sleeping better - feel free to scream shout whatever it takes to feel better - please keep us informed


 
Posted : April 8, 2016 11:28 am
camhead
(@camhead)
Posts: 2
New Member
 

Sending my sincere thoughts and prayers to you and your family.


 
Posted : April 9, 2016 8:27 pm
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